Why do I need to eat well?
People with Huntington's disease can find it difficult to maintain their body weight,
or they can be underweight. People who are very underweight are prone to infection, have slower wound healing and progressive
muscle wasting and lethargy. People with Huntington's disease usually need a much higher calorie intake than normal.
I am hungry but find eating difficult
You do not have to eat large meals. Small frequent snacks, high in calories (little
and often) can be just as helpful.
Do not drink large amounts of fluids with meals as these will make you feel full
quickly but do try to drink plenty of fluids in between meals. Take your time over meals. Sit comfortably.
Add extra calories
MILK is a good source of protein. Try to drink at least one
pint of full cream milk a day. You can add calories easily to milk by adding 2oz skimmed milk powder to 1 pint of full fat
YOGHURT or similar desserts can be used on fruit and puddings.
Those with added cream or the thick'n'creamy ones are ideal. Avoid low fat or diet yoghurts.
DOUBLE CREAM added to cereals, fruits, puddings, soups and
mashed potato etc will increase calories.
CHEESE is a good source of both protein and calories. Full
fat cheeses such as cheddar and Lancashire are the best. It can be sprinkled on creamed potatoes, soft vegetables, soups,
fish in sauce, minced meats and baked beans. Add cheese to omelettes and scrambled eggs. Cheese in a sandwich, on biscuits
or on toast is an excellent snack.
MEAT AND FISH in any form is useful. Cook well and serve with
plenty of gravy or sauce. Tinned fish in oil or mayonnaise rather than brine or tomato sauce has more calories.
LENTILS AND BEANS are also a good protein source. They can
be added to soups, casseroles, and stews, or used just as a vegetable. Baked beans on toast is a useful snack.
NUTS (for those who are not experiencing swallowing problems)
can be added to salads, baked apples, cakes, biscuits, ice-cream and crumble toppings. They are good foods to nibble between
meals. Try having a peanut butter sandwich or peanut butter on toast for a snack.
Foods you may find difficult to swallow
Raw or hard cooked vegetables, salads, peas, sweetcorn, broad beans, tomato skins;
hard fruits such as apples, pears, grapes, pineapples, fruit skins or fruit peel., crusty bread, pre-sliced bread, granary
bread, high fibre white bread, bread crusts, toast, crackers and crisp breads; sponge cakes; crisps; hard chips; flaky and
puff pastry; hard pastry crusts; nuts and food containing nuts; dried fruit and foods containing dried fruit; shredded wheat.
Put more energy in it!!
SUGAR - use lots. Put it in hot and cold drinks, on softened
cereals and in desserts.
HONEY, JAM, MARMALADE, GOLDEN SYRUP, TREACLE can be spread
generously onto bread, biscuits and scones, if you can swallow these. Stir them into milk puddings and softened breakfast
cereals. Add honey to Greek yoghurt for an excellent snack.
can be melted in the microwave added to custard, puddings or milky drinks.
If you find you have a dry mouth you may find the following suggestions helpful:
* small sips of drinks frequently - a small flask with a lid and straw like a cycling flask
can be carried around easily.
* fruit drops may help to get the saliva flowing - some people have commented that acid
* sucking ice cubes is useful unless you are likely to swallow or choke on them. You can
make these with lemonade or fruit juice as well as plain water.
Ask your Doctor about the possibility of prescribing one of the artificial saliva preparations
Care of the mouth
To keep your mouth in a healthy condition:
* use mouthwashes regularly. Ask your nurse or Doctor about the best one for you to use.
* if your lips are dry, apply a lipsalve eg. Vaseline.
* clean your teeth frequently. Use dental floss.
* visit your dentist for regular check-ups.
* a cube of cheese after each meal will neutralise the acid that causes tooth decay.
* if you wear dentures, keep them clean and make sure they fit correctly. Ask your dentist
for advice. Dentures are one of the first things to become loose when people lose weight.
* sometimes foods may not taste the same or seem to have no taste - good mouth care can
Keeping food down
* sit upright to eat your meals. Try not to lie flat immediately after a meal.
* eat your meals in a well ventilated room and wear comfortable clothing.
* try to ensure there is a calm, relaxed environment.
* minimise what is going on around you so you can concentrate on eating.
* discuss with your doctor or a dietician any problems regarding eating you may be having.
Changing your diet to suit your need
At times it may be necessary to avoid foods that you know cause you problems, actually identifying
these can sometimes resolve the problem.
Sometimes you may need to change the consistency of the food i.e. eat softer or pureed food.
If you find you are having difficulty swallowing thin liquids, try thickening them slightly,
this often helps and prevents coughing.
There are many thickening agents on the market,
your GP can prescribe one for you.
|How to get the texture right if you
need soft or pureed food
There are three different ways to try:
Using a liquidizer
A liquidizer is the quickest and most efficient way giving the best results.
The following tips may help you:
Try not to liquidize all of the meal together, liquidize the meat and vegetables
separately. You can add sauces to give flavour.
Meat and Fish
Remove all skin, bone
and gristle from cooked meat and fish, cut into small pieces add stock or gravy or sauce to get the right consistency.
Cook them to soften before
liquidizing again add stock, gravy or sauce to get the right consistency. Cooking them by steaming will maintain their nutrients.
It is easier to blend fruit that
is soft, or thawed if frozen. Tinned fruit in syrup is a good choice. Stewed fruit can also be liquidized.
Using a Hand Blender
These are cheaper than liquidizers but take longer and some foods may not cooperate.
Using a sieve and spoon
After cooking some food can be forced through a sieve this may need to be done more
Whichever method you use it is important to remember:
* meals need to look attractive
* all utensils should be kept clean
* meals may need warming during serving if feeding takes time.
* remember a calm relaxed environment will help!
* nutritional supplements which can help to add calories to your diet are available
from your GP.
* a dietician can advise you on your individual needs. Referral can be arranged by
* a referral by your GP to a speech therapist can be helpful in resolving some of
your swallowing problems.
Some ideas for soft and pureed diet
pint of milk (full fat)
Put the powder into a jug. Add the milk gradually, stirring all the time until
all the powder has dissolved. Store in the fridge.
pint fortified milk
2 tsp honey
Warm the milk. Put the honey into a cup. Pour the warm milk into the cup, stirring well.
pint fortified milk.
1 scoop ice cream.
Milk Shake flavouring.
Stir all the ingredients together in a tall glass
pint fortified milk.
1 carton of ordinary fruit yoghurt.
sugar to taste.
Whisk all the ingredients together in a
tall glass, serve chilled.
MINT CHOCOLATE COOLER
1/2 pint fortified milk.
2-4 heaped tsp drinking chocolate.
the drinking chocolate and the peppermint flavouring with a little milk. Add the remainder of the milk, stirring well. Pour
into a glass and decorate with grated chocolate.
pint fortified milk
orange and lemon slices for decoration
Add milk to the lime cordial according to
taste. Serve chilled in a tall glass decorated with orange and lemon slices.
WHISKY AND HONEY WARMER
3/4 cup of warm milk
2 level teaspoons clear honey
1 tablespoon whisky or brandy
Warm the milk, stir in honey,
pour into a cup.
HOT MILK MOCHA
pint of milk
2 tablespoons drinking chocolate
1 level teaspoon instant coffee
1 tablespoon double cream.
milk and pour into mugs, add chocolate and coffee, stir well, swirl in fresh cream and serve.
There are a wide range of high calorie, high protein drinks in many sweet and savoury
flavours available from your GP or contact your Dietician.
Meal ideas for those who have difficulty swallowing
Instant hot oat cereal e.g. Readybrek
plain or flavoured yoghurts
casseroles, hotpots etc,
fish with sauces
cheesy potato bake
pureed fruit, milk puddings eg rice puddings, semolina, custard, blancmange jelly,
including milk jelly smooth yoghurts and fromage frais. ice cream and sorbet, instant desserts e.g. Angel Delight, Birds Instant
Whip, egg custards and creme caramel
NB: TRY TO HAVE A GLASS OF FRESH ORANGE OR GRAPEFRUIT JUICE
OR BLACKCURRANT CORDIAL EVERY DAY TO PROVIDE YOU WITH SOME VITAMIN C.
A Dietician can give you detailed individual advice about your needs, A referral
can be made via your GP.
In the United Kingdom:
The Huntington's Disease Association has a team of Regional Care Advisers who can
offer help on a wide range of problems. For details of the Regional Care Adviser in your area please contact Head Office on
0171 223 7000.
In the United States:
Contact your nearest HD Center of Excellence or HDSA Chapter. To find
the one nearest to you go to Huntington's Disease Support Information